Sunday, October 12, 2008

It seems like Patrick is getting better at the whole waking up when it's time to eat thing. I know that he actually finished a bottle this morning, but he hasn't gotten through most of his bottle feedings without falling asleep before being done. Like everyone says, this is the slow part of the NICU stay.

This morning he had a pretty good spit up and scared me when he started choking and his heartrate started dropping. I turned him on his side, pulled out the blue sucker thingy and tried to get it out of his mouth. I wasn't so great at that and hit some button to call the nurse, and that set off some sort of scary sounding alarm, so she came rushing in and pulled out the air suction tool and cleared him out for me. Now I'm pretty sure that he would have been just fine, but I think that's the first time he really ever had me worried.

Jon talked to the doctor this morning, and we're not counting weeks anymore, we're going by DAYS! It could be 7 - 10 DAYS before Patrick comes home. Days!

I think I'm going to have to start changing his clothes twice a day to get him in all the preemie things we have for him! He's really growing into them now, and last night he weighed 4lbs 4oz. After we weighed him he did have a huge poop, so he was probably only 4lbs 3oz. That's my guess anyway.

Patrick had on his Husker hat Saturday, but it didn't seem to help. We didn't get the game in his room, so I was on the phone with Gramalissa to hear the end of it. So sad! Next game I'll have to remember the hat AND the Future Quarterback onesie! (I don't know about quarterback for a Connealy... but hey, it could happen!)

Jon was putting in the new hardwood floor with Uncle Justin the entire day, now we're getting everything else done so carpet can come in on Wednesday! I had my first day back to work on Friday, and it was a slow day. We'll see how this week goes. I just hope I remember everything! The company I work for has been so understanding through all of this, and it makes it so much easier to be working while Patrick is in the hospital.

So, there's really not a whole lot of exciting things going on. And that's exciting!

Thursday, October 9, 2008

The Hamptons! Notice the empty bottle on the table?
This is an outfit that friend of Jon's from college sent Patrick... he said to let him know if it fit. I think we'll need a couple more months.This outfit did fit though!
Soooo big...Last night, Patrick came in at 4lbs, and this morning he had spent over 12 hours at room temp inside his isolette, so at 11am, he went to a crib!



He's the tiny little bump in the upper corner of the bed!

Since he's not in the isolette anymore, he has to be weighed on a real scale... 4lbs 1oz tonight!
They did increase his feedings to 36ccs, but Patrick wasn't as interested in the bottles today. Doc said it could be a week, two weeks if all goes well in the crib. So far so good!


Wednesday, October 8, 2008

Happy 1 Month!
Patrick is one month old today! He is also 4lbs!! 1820 grams! We're up to THREE bottle feedings today, but the third one didn't go as well as the first two. He finished those off without a problem. Tonight we tried feeding him after giving him his Hepetitis B vaccine, and even though he had Tylenol with it, I think it was bothering him enough to distract him from eating. That, and he's really interested in his new room.

Patrick moved to the Hamptons yesterday evening! They're actually the med/surg rooms that are meant for Children's older patients, I think, but the NICU has been using them for a while since there have been so many babies in the unit. They're right next to the skywalk that connects Children's and Methodist, so they're officially the Skywalk rooms, but they're so nice the nurses call them the Hamptons. Which is also funny to me, because our friend Katie who just got back to Omaha was actually interning at a theatre in the Hamptons this summer.

ANYWAY.

There's a couch that folds out to a bed, a flat screen TV and we get our own bathroom now. It'll be really nice when he's in the crib because it's so much quieter than the regular NICU rooms. I totally miss all the nurses we had upstairs and being able to listen in on the conversations that were going on around us. I'm sort of a snoop like that. Jon hates it. But the nurses are still just as awesome in the Skywalk, and we're happy to be there.

Patrick is a cute kid, and I say that because it's completely true, not because I'm his mother. He's almost big enough to not be drowning in his outfits... give him a pound or two and he'll be fine.

I have pictures, but I'm about to fall asleep typing, so I'll put them up another time.

Thanks for checking in with us!

Monday, October 6, 2008

Happy 4 (or 33) weeks Patrick!

He's up to 3lbs 12 oz and taking entire bottles! Saturday night at his midnight feeding Patrick managed to finish off all 30ccs in about 15 minutes. Not as much luck when I tried on Sunday, but this morning at his 9am, he did it again! The doctor decided to up his feeds to 32ccs, and if he takes a whole bottle again, he'll get oral feedings a day! I'm thinking I might try a bath tonight before the 9pm feeding, since last time he got a bath he was wide awake after it, but he was too cold be out of his isolette.

The kid also had the loudest poop ever when I was getting ready to give him his bottle this morning. Seriously, the people in the room next door had to have heard it. I'm starting to get afraid that he really does wait until he has a clean diaper on to make a mess.

Patrick keeps pulling his feeding tube out, so maybe it's a sign that he's ready to get more bottles. It's not fun when he pulls it out, because they have to put it back in, and that's the only time I've ever really heard him cry. Jon said this morning the lab tech came by to do a blood draw from his foot, and Patrick was MAD. I guess he was kicking his foot like crazy trying to get the bandage off. Poor kid.

So, 3lbs 12oz came to 1695 grams. The nurses said it'll be 3 or 4 days and they'll probably get him in a crib to see how he maintains his temperature!

I've been using a lot of exclaimation marks this time around. We will have Patrick's room ready for him to come home as soon as the carpet is installed. Jon's been working so hard to get everything in the house ready for Patrick. The bathroom is the most finished room in the house right now (just a few pieces of trim left) and Patrick's room will soon be completely finished!

It seems like we're getting into a routine around here, but I start work again on Friday. It's weird, but I'm sort of excited to get back to work. I'm definitely more sad that I'm not going to be with Patrick as much as I've been able to, but once he comes home they're going to let me have some more time to be home with him. They've been great about everything that's been going on with us over the last few months.

The doctors are happy with Patrick's progress and so are we. He'll be coming home in about 3 weeks!!

Saturday, October 4, 2008

Yesterday, Patrick only took 5ccs and 3ccs from his bottles. Just didn't want to wake up for his feedings!

He's also developing this bad habit of waiting until we change his wet diaper to a clean one, then he poops in the new diaper. I'm not a fan of this.





I'm not sure if he knows it yet, but Patrick is a Huskers fan! He weighed in at 3lb 9oz last night, and this morning he took 23 of the 30ccs in his bottle!! Not a whole lot else going on up at the hospital. Gave him a bath today, and he was cold and awake afterwards, so he posed for a quick picture in his new hat.




Patrick's room got painted today! Just a few touch ups tomorrow and it'll be finished.




We're about to head up to see him here in a little bit. Hopefully he'll be awake enough to take a bottle from dad!

Thursday, October 2, 2008

Pictures!

This is Patrick's new room!Patrick with dad...

Another burrito wrap
The blanket is right...

Bear Collection
When I came in this morning, he had pulled his feeding tube out of his nose and was chewing on it and playing with it.

I had to take some pictures before the nurses came in to fix it!

Don't know if I mentioned, but his head ultrasound was normal! Woo! In a few weeks he'll have a vision check, but chances are that will be normal too.

This morning he took 16ccs from the bottle when I tried.

Other than that, I don't think there's a whole lot to report. Grandma Vickie and Aunt Karen are coming over to paint this weekend, so if there are any volunteers, now is the time we'd need some help!

Wednesday, October 1, 2008

Apparently things weren't exciting enough, so Patrick decided to make things a little more interesting! Last night after we left, he spit up enough that he aspirated, his heart rate dropped and they had to suction him out. He didn't look so great for a while, but about an hour later his color was back and he looked better. This morning when I took his temp, I thought his feet felt cold and his temp came to 96.9. The nurse practitioner even took a rectal temp to verify that his temperature was around 97 degrees, so we had to warm him up. The rest of the day was pretty boring.

He took about 13ccs by bottle this morning, and he was just too sleepy tonight to even try. We're okay with that, we just really wanted to try with him again.

Patrick weighed in at 3lbs 6oz last night, and 3lb 7oz tonight!