Monday, September 29, 2008
He came in at 3lbs 5oz, or 1500 grams! Also exciting. The nurses are dressing him up a lot these days, and I can't wait until he can fill out some of the bigger things! He's gotten a substantial collection of blankets over the last 3 weeks, so he will never have a boring isolette or crib.
Sunday, September 28, 2008
Nothing big going on right now. Patrick's 4 year old cousin Colin told us tonight that he can't say Patrick ("I can't say Patrick!"), his name should be Zach. He's also told us we should have named him Dash or Colin Cheeto.
Saturday, September 27, 2008
Friday, September 26, 2008

I do have a card reader to play with, but I'm not sure if it actually deleted all the pictures off of the camera we have with the cord, or if I managed to forget that I put them all on the computer already, so I'll play with that soon.

Thursday, September 25, 2008
We decided that carpet would be a good idea before Patrick gets home, so we added that project to the list of things that need to get done in less than 4 weeks!
He is sort of a stinky kid, so this weekend Jon gets to help give him a bath.
I feel like there are things that I'm forgetting, but I think I've gotten all the notable things on here! Gramalissa brought up a card reader today, so as soon as I get that all set up on my computer I'll have those pictures that have been hiding on our camera.
Wednesday, September 24, 2008
The easiest kid in the unit...
We did try to see if he would figure out the breast feeding motions, but he was way too sleepy to even try today. Another time! He's still on the early side for all of that.
I don't know, there's not a whole lot else to say! Jon's working hard on getting the house ready for Patrick to come home. Tonight we were able to go over and meet Ava and Lydia. Lots of familiar things over there, from both Will and Patrick. But it sounds like everything is going about the same track as Patrick's.
When Will was in the hospital, his neighbor was Reece. We sort of got to know Reece's mom, and today they were all up at the hospital. Kristen stopped by while I was at lunch and left some really cute outfits for when Patrick is bigger, and I actually ran into her as I was coming back from lunch! Going through the NICU is such a strange experience, and it's good to have people around who know what's going on. I'm glad that things are going well for Reece, and we'll hear plenty about Lydia and Ava.
I think it gets later every time I'm able to post something! Thanks for checking in!
Tuesday, September 23, 2008
3 pounds!
The doctor got rid of his oxygen sat probe, so that's one more line gone! I'm so used to having the yellow line on the monitor screen to watch, I sort of feel lost without it. He's only had one episode where his heartrate dropped to 80, and that was only for a second.
We did get some big news today -- Jon's old coworker Greg and his wife Brenda had their twin girls today! Brenda had been up on the 9th floor for just over a week, and they had gotten to 29 weeks and one day. I think their names are Ava and Lydia, and they weighed 3 lbs and 2lbs 15 oz! It sounds like they're on the same track as Patrick, and they are also on the 5th floor but across the hall from Patrick. Their aunt told me that now Patrick has two possible girlfriends!
Anyway, I wanted to just put out a congratulations to Greg, Brenda and big sister. We hope that everything will go just as well with them!
Monday, September 22, 2008
Patrick weighed in at 2lbs 14 oz last night, so he's still gaining weight! We'll be back to 3lbs soon. He's eating and pooping and doing everything he's supposed to be doing. He has had a couple of desats (where the O2 reading goes below 84%) but he self resolves, most of the time before the nurse can even get over to check what's going on!
Other than that, we can play dress up with him. Jon's getting pretty good at diaper changes. Patrick is wide awake just before his feeding times, and he's showing signs of being mature enough to nurse - putting his hands to his face, sucking on the pacifier- and we might start trying bottle feedings and all that next week.
Patrick is not the exciting one up here today, and we're okay with that!
Pictures again someday. I'll have to remember the camera.
Saturday, September 20, 2008
Patrick is getting full feeds now - 25ccs - and they've started using a fortifier to get him some extra calories, more calcium and protien. He's been a little spit uppy since the change, but he'll probably learn to tolerate it all better.
I have a bunch of pictures on our camera with the lost cord, and a video somewhere else. I'll try to figure those things out and get them up here too.
Yesterday I gave him a tub bath! And by tub bath, I mean Tupperware shoebox bath. They have a mesh ramp to put him on, and we swaddled him up and put the blanket and all in the water. He did not mind one bit! Not even the hair washing.
The doctor has been calling him a rockstar and Superman lately. The nurse today was saying he's been doing extremely well for his gestational age. He seems to be one of the easier kids up here!
Jon was able to spend some time holding Patrick this morning and this afternoon. It seems like he's either focusing better on faces or even recognizing his dad because he just stares at Jon! I'm starting to believe that he really does recognize us.
It's been a pretty exhausing time for Jon. He's trying to get the house ready for Patrick to come home, and the only time he really has is on the weekends anymore. It's sort of up to me to get this room thing rolling, and in order to get paint for the room, I need to know what kind of things we're going to put in his room. I don't know if it's complicated because I'm making it complicated, or if baby things are just crazy to everyone! The sooner we paint the better, just to get any fume-yness out of the house before he comes home!
I think that's everything that has happened in the last couple days! Thanks for checking in with us!
Thursday, September 18, 2008
The only sort of strange thing is that his temp has been on the lower side for the last two days. Nothing they're worried about, just lower than normal. I washed a bunch of blankets we've gotten as gifts and some of the outfits too. When they take the light off, we'll be able to dress him up more!
Tuesday, September 16, 2008
Getting rid of tubes!
Monday, September 15, 2008
One week down...
Thanks for checking in on us! Glad to have another day of good news about Patrick.
Sunday, September 14, 2008
Saturday, September 13, 2008
Technical Difficulties
They did go up on his feedings to 6ccs every 3 hours, and he took those well, so this morning the doctor decided he could handle 9ccs! 9ccs is about a third of an ounce, he told us.
Patrick was under a huge light for the phototherapy, but he's doing better so they moved to just the spotlight. We are allowed to turn it off and take his mask off, and when he's wide awake it's fun to watch him. Last night he was so ANGRY when we were there, and we were trying to calm him down with the pacifier and swaddling, but nothing helped. Turned out he was making a large poop and was not having a fun time with that! But we're excited for poop! I forget how much it weighed, but kiddo has lost some weight since birth - last I heard he was down to 2 lbs 9 oz.
He figured out the pacifier thing yesterday. Jon put it in his mouth three times in a row, and three times in a row Patrick grabbed it and pulled it out. And then got mad. On the fourth time, he pushed it in instead of pulling it out, and he held on to it for quite awhile.
I was able to hold him for about an hour yesterday, and that was really nice. I've never fallen asleep in one of the hospital recliners before, but I dozed off a couple times with him. And he totally faceplants. You would think he'd be really uncomfortable, but if you try to move him he gets mad! Also, I was able to get my first haircut since March!
The news this morning isn't anything drastic. The doctor did hear a heart murmer this morning, but he's not going to stress about it until Patrick starts showing signs of trouble. It may be the same issue we had with Will. There's this tiny little duct in babies' hearts that usually closes after birth. With preemies, this tends not to happen, or it just takes a longer time. Since this is the first time the doctor has heard this heart murmer, he's thinking it might just be the duct closing off and causing more noise than it did before. Like I said, he's not worried and we'll see what happens.
Patrick has had a lot of visitors! It's been great to show everyone how well he's doing. Gramalissa, Gramma Vickie and my dad (I still can't call him grandpa anything! Too weird for me) have been up quite a bit to see him. Aunt Sara finally got over her cough and came up to visit yesterday, Uncle Trevor met him the night before. I heard that next weekend his Uncle Ryan will be coming down from Minneapolis to come meet him. We've also talked about having Jon's grandma come down and see Patrick before she goes to Texas for the winter. I think the thing that most people say at about Patrick is that he's long. He has long arms, long fingers, long feet. We have no idea where that comes from. Makes you wonder how tall he'll end up being!
Today we're going to get some things done around the house and head back up in the evening! Thanks Grandma Vickie and Aunt Karen for coming over to paint and put plants in our yard!
Thursday, September 11, 2008
Poop!



Wednesday, September 10, 2008
Late Night!
It's nice to have good news to share!
Tuesday, September 9, 2008
Day One
I went down to check on him right away when I woke up, and his ventilator settings were so low they decided to put him on the CPAP. The CPAP is pretty much these prongs that go up your nose and it provides positive air pressure to help keep his lungs open. I think. Don't ask me what the C stands for.
They hadn't made any changes when I went back up to my room, but when Jon went down later with our friend Ben, they extubated Patrick and he just started screaming! He was so not happy with the whole situation, but the good thing about him getting upset is that it makes him take deep breaths and his O2 sats go up. It's still amazing to hear him cry.
He's been doing a good job on the CPAP all day, but he still has episodes where he takes short shallow breaths, so they decided not to move him to just the nasal cannula. He's been on close to room air for most of the day, which on the settings is 21%. He's on 24% right now just because he's had those episodes, but he's still doing great.
As far as other medications he's getting, I don't think there's a whole lot. I know they run an antibiotic, and other than that I think he's just getting fluids and some nutritional stuff- TPN. They might even start a feeding tube tomorrow and get him some breast milk! It took such a long time to get Will started on food, hearing that he could start tomorrow was, again, amazing.
On the last message I mentioned they were trying to get his blood pressure up, and that doesn't seem to be an issue anymore. He's been staying in the perfect range all day long.
They did start up the biliruben light for jaundice, so he's wearing purple eye covers right now. They took off his hat and you can really see all his hair!
Other than that, he hates getting his diaper changed, he hates getting his temperature taken, the blood pressure cuff and being moved. Can't really blame the kid, though! He'll get used to it. They put up his hand and foot prints tonight - they're huge!
I'm going home tomorrow, so I'll make sure I find the cord for our camera and get some pictures up here.
Thank you so much for all the prayers and wishes. It really feels like such a miracle that Patrick is doing so well and there's a lot to be said for positive thoughts. We are just so relieved and happy.
What you've all been waiting for...
Right now he is on a ventilator because he was just deciding not to breathe for a little bit - a few apnea episodes. They're hoping to get him off the ventilator and to CPAP or something else as soon as tomorrow. His blood pressure is a little low, but they're not worried about it. In all, he looks SO GOOD.
He has a head of blonde hair and Jon's nose, but everyone agreed that he looked more like his mom. They had a bright green knit hat on his head. We'll have pictures as soon as possible!
Earlier today we were able to do a 3D ultrasound, and they look pretty accurate to us.
I think the labor story I will be telling for the rest of my life is how I threw up all over the doctor right after she broke my water. She had to go change, and in that five minutes the nurse realized that he was right there ready to come out. Just like Will, it took two pushes to get Patrick out.
Wow.
We have a baby.
Monday, September 8, 2008
Jon
Not the case. The contractions kept getting stronger all night long.
After almost 24 hours of contractions, they came back in with the magnesium sulfate. FINALLY they're almost stopped. I'm still having a contraction every once in awhile, but it's a lot better than it was before.
Actually just had one as I was typing this. Fun.
They're still going to do what they can to stop everything. We'll see how today goes.
Sunday, September 7, 2008
Experimenting with Tocolytics
They put me on the monitor at 7, and soon after the doctor came in and decided they would try increasing the Nifedipine I've been taking to help stop any contractions. An hour later, there was no change. I was having contractions about every 10 minutes, but the baby looked okay on the monitor. Since the medication increase didn't help, they came in and gave me a shot of Terbutaline. I hate terbutaline. It increases your heart rate and I got so incredibly antsy, but I couldn't move with the monitor on. Good news is that it stopped the contractions and things have been quiet for a few hours now.
Doc said that even though 29 weeks is a great place to be, they're still going to do everything they can to keep me from having this baby, and they'll put me back on the magnesium if they have to. But things are calmed down now, so we're not going to worry too much right now. Okay, I'm not going to worry too much. I'm sure Jon will worry enough for all of us!
Friday, September 5, 2008
No news, really. I don't think there's even plans for anything to write about. Just more laying around. I dropped something last night and decided that I could bend down to get it. I got stuck. I learned that my knees don't work like they used to. That was fun!
Jon brought up some sunflowers he cut out of a field and brought them up here. They're really pretty, and I'd take a picture to put up here, but the camera is at home. I would probably have some pictures of the room, but Jon kept trying to take terrible pictures of me up here and I made him take it home. Maybe sometime I'll be able to trust him with a camera again, but not today...
Thursday, September 4, 2008
28 weeks, 3 days


Wednesday, September 3, 2008
No News = Good News

Oh Chile dog.
Not much going on up here. There's some new med students doing their rotation up here, so different people are waking me up at 5am. I hope we'll do an ultrasound tomorrow since it's been a week since the last one. Otherwise, no contractions, nothing to really worry about for the time being.
Tuesday, September 2, 2008
Mystery Pain
Baby is good, I'm feeling better. Not much else going on! Everyone is so excited that we got to 28 weeks. Now they want to be greedy, Dr B told me this morning. Greedy is good!
Monday, September 1, 2008
28 weeks!
28 weeks is a pretty big developmental milestone as far as the survival and complication rates with babies. I found a chart that broke it down pretty well. If you compare this baby to Will, the differences are huge. The risk of respiratory distress drops from 71% to 36%, chronic lung disease drops from 47% to 15%, Inflammation or death of part of the GI tract drops from 11% to 6%, the risk of infection goes from 44% to 17%, survival to 120 days or hospital discharge jumps from 56% to 94% and survival without any of these complications goes from 36% to 79%!
Will had problems with everything on that list and more. He had to have part of his intestines removed due to the death of part of his GI tract, he had respiratory issues, and he was constantly fighting infections. At this point, it looks like this kid could still have problems, but not nearly as many or as severe! We still know that there are all kinds of things that might not work out, but we can't help but be excited that we've gotten as far as this, and that everything looks so stable.
I did ask the doctor this morning about my chances of going home and she said there was a small chance, but we definitely have to make sure that I'll be okay without the mag. We'll take that small chance!
Thanks for checking in today, and I'm so glad I could write up some good news!